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Sunday, June 28, 2009

Dawson's progress

After he was diagnosed with CF,
our specialist at Primary Childrens in SLC put him on
enzymes which help his body absorb his nutrients.
He's already gained 5 pounds.
This is the most he has ever weighed.
I cannot express my excitement!
He takes 3 of the enzyme horse pills with every meal
and 2 with every snack.
Also a multivitamin (another 2 horse pills) and
antibiotics (only 1 horse pill) for a staff infection.
Good news is his lungs are clear.
But for preventative measures, he has an asthma type inhaler
he does twice a day and the Nebulizer inhaler treatment once a day.
We call it his bong.
We also do airway clearance treatments twice a day.
Bad news is he is extremely allergic to cat dander.
As many of you know we have 2 & 1/2 cats.
Two Persians we've had for 4-5 years and one stray we took in
from a friend. He mostly lives outside (the cat not the friend)
but stops by every once in a while for a hot meal and some petting.
Please don't tell us "just get rid of the cats".
Any cat/pet lover knows it's not that easy.
We will have to find them new homes.
Good homes with good people where we could visit them.
Dawson is heartbroken over it and feels responsible.
He doesn't understand that his health depends on it.
Getting rid of the cats is not an option in his eyes.
I still can't shake the guilt.
I really do try not to beat myself up but I should have
listened to my "mother's intuition" when others told
me I was just worrying too much.
I'm thankful he is not as bad off as he could have been.
It still hasn't sunk in that this is FOREVER.
Or at least they find a cure.

1 comments:

Narrativemedicinewoman said...

I get Google alerts for the term "Sixtyfive Roses" because that's the name of my book. (see www.sixtyfiverosesthebook.com) So I got an alert about your blog, and have read it.

Just sending my support and understanding as my family has been there, done that, and have several t-shirts, so to speak.

I am very concerned for your daughter as a fellow "well-sib," especially as there is so much going on inside and out for girls at 14, without having a brother diagnosed with CF, so I also send big hugs to her. Even if she says she's cool with everything, she will definitely have many of the same fears and feelings you do, without the same ability to handle them.

In any case, again, just sending my understanding and support.

Many blessings,

Heather Summerhayes Cariou